Hypermobility / Ehlers-Danlos Syndrome

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Overview

Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder are connective tissue conditions causing joint hypermobility chronic pain dislocations multi-system impacts. Connective tissue holds body together. When too stretchy joints unstable injuries frequent. People experience chronic pain frequent subluxations partial dislocations fatigue dysautonomia POTS postural tachycardia syndrome. Pain constant debilitating often dismissed by doctors. Many wait years for diagnosis. You are just flexible minimises reality of daily dislocations exhaustion. Hypermobility commonly co-occurs with autism ADHD anxiety. Genetic link being researched. Mast cell issues digestive problems dysautonomia compound picture. Many have medically complex presentations affecting multiple body systems. Physiotherapy focusing on strengthening not stretching stabilises joints. Pain management pacing orthotics help. No cure. Management lifelong. Social impacts include invisible disability discrimination activity limitations invalidation from looking healthy. Hypermobility is not party trick but painful disability.

Key Characteristics

Joint hypermobility and instability
Frequent dislocations and subluxations
Chronic pain throughout body
Fatigue and exercise intolerance
Dysautonomia POTS common
Stretchy fragile skin
Co-occurs with autism ADHD anxiety
Invisible disability looks healthy

What Helps

Physiotherapy for joint strengthening NOT stretching
Pain management medication TENS heat ice
Pacing and energy conservation
Orthotics and bracing for joint support
POTS management if present
Genetic diagnosis through specialist
Occupational therapy for daily tasks
Validate chronic pain it is real
Disability aids without shame
EDS UK support and community

Note: Informational only. Consult professionals for individualised support.

Related Conditions

Autism