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Functional Neurological Disorder (FND) information card
⚡ Neurological

Functional Neurological Disorder (FND)

Genuine neurological symptoms without structural damage. The brain is sending the wrong signals. Real, not imagined.

🧑 Teens & Adults ♾️ Lifelong

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📖 Overview

Functional Neurological Disorder (FND) causes genuine neurological symptoms — including weakness, paralysis, tremor, seizures, movement disorders, speech difficulties, and sensory symptoms — that are not explained by structural damage or disease detectable on standard tests.

WHAT FND IS
FND is not psychosomatic in the outdated sense of being imagined or made up. The symptoms are real and can be severely disabling. The disorder lies in the function of the nervous system — how the brain sends and receives signals — rather than in structural damage like a lesion or tumour. A helpful analogy is a software problem rather than a hardware problem: the brain hardware appears intact on MRI but the programming is not working correctly.

FND is common — it is the second most common reason for neurology outpatient attendance, after headache. It is often poorly managed because it does not fit neatly into neurological or psychiatric models, and it carries significant stigma from both specialties.

TYPES OF FND SYMPTOMS

Functional Weakness and Paralysis
Weakness or complete loss of movement in a limb or one side of the body that does not follow the pattern expected from a structural lesion. The weakness may fluctuate — better on some days, worse on others, better when distracted and worse when attention is focused on the affected limb. This fluctuation is a feature of FND, not evidence of fabrication.

Functional Tremor
Involuntary shaking that may differ from neurological tremors — often variable, responsive to distraction, and sometimes affecting different body parts at different times.

Functional Movement Disorders
A range of abnormal involuntary movements including dystonia (abnormal posturing), myoclonus (sudden jerks), gait disturbances, and choreiform movements.

Functional Seizures
Also called dissociative seizures, non-epileptic attack disorder (NEAD), or psychogenic non-epileptic seizures (PNES). Functional seizures look like epileptic seizures but are not caused by abnormal electrical brain activity. They are neurological events — real, involuntary, and not under the person's conscious control.

Functional seizures may involve: unresponsiveness, shaking, falling, emotional responses during the episode, prolonged duration (often longer than epileptic seizures), fluctuating intensity during the episode, and rapid recovery with full awareness. Anti-epileptic medication does not help functional seizures and may cause harm. Many people with functional seizures also have epilepsy — the two can co-exist.

Functional Sensory Symptoms
Altered sensation — numbness, tingling, altered vision, altered hearing, or pain — without a structural cause. Functional pain can be severe and disabling.

Cognitive Functional Symptoms
Brain fog, memory difficulties, concentration difficulties, and word-finding problems. These cognitive symptoms are real and affect daily function significantly.

Speech and Swallowing Difficulties
Functional dysphonia (loss or alteration of voice), functional dysarthria (slurred or difficult speech), and functional dysphagia (swallowing difficulties).

THE ROLE OF TRAUMA AND STRESS
Trauma, stress, and adverse life events are frequently associated with FND — but FND is not caused by making it up in response to stress. The relationship is neurological. Stress and trauma affect nervous system function in real ways that can precipitate FND in susceptible individuals. However, FND also occurs without any identifiable psychological trigger. The absence of a clear psychological cause does not mean FND is not present.

FND AND THE MEDICAL SYSTEM
Many people with FND have had long and damaging experiences with the medical system before receiving a diagnosis. Being told there is nothing wrong, being referred to mental health services as if the symptoms are imaginary, and being treated with disbelief and dismissal are common experiences. This history of medical invalidation is itself traumatising and makes engagement with treatment harder.

A positive diagnosis of FND — explaining what it is, not just what it is not — is the starting point for recovery. Treatment requires a specialist multidisciplinary team including neurophysiotherapy and neuropsychotherapy adapted specifically for FND.

RECOVERY
Recovery from FND is possible, particularly with early specialist intervention, but is variable and non-linear. The prognosis is better when FND is diagnosed and treated early, when the person has a clear explanation they understand, and when a specialist FND team is involved. Many people improve significantly. Some recover fully. Others have a chronic course with periods of improvement and relapse.

🔍 Key Characteristics

Genuine neurological symptoms without structural cause
Weakness tremors seizures sensory changes
Symptoms vary with attention or distraction
Often triggered by trauma or stress
Brain function issue not structural damage
Stigmatised and dismissed by many doctors
Co-occurs with trauma anxiety chronic pain
Invalidation worsens condition

🌅 What Day to Day Life Can Look Like

Symptoms are unpredictable — attacks, weakness, or tremor can come without warning
Fatigue is significant — the brain and body are working against themselves
Mobility may be affected — the person may use a wheelchair, crutches, or have variable walking ability
Functional seizures may be frequent and disabling
Pain is common alongside FND
Cognitive symptoms — brain fog, memory difficulties, word-finding problems — affect daily function
Symptoms fluctuate significantly — good days and bad days, and good hours and bad hours
Relationships and work are affected by unpredictability and misunderstanding
The medical system has often failed the person before — distrust of healthcare is common and justified
The person is often told nothing is wrong when everything very much is wrong

What People Often Get Wrong

FND is not made up, attention-seeking, or psychosomatic in the old sense
Real neurological symptoms are present — MRI being normal does not mean the person is fine
FND is not just another name for anxiety or depression
Telling someone with FND to push through or that it is in their head is harmful
Functional seizures are not epileptic seizures and must not be managed as if they are
FND requires specialist treatment — not standard physio or standard CBT
The person is not faking — the symptoms are outside their voluntary control
FND is more common in women but occurs in all genders and ages
Stress may be a factor but FND is a neurological condition not a psychiatric one
Recovery is possible but is not linear and is not achieved by willpower alone

What Helps

Neurophysiotherapy to retrain movement
Trauma-informed therapy EMDR CBT
Pain management
Validate symptoms as real and neurological
FND specialist clinics
Gradual rehabilitation not pushing through
Address trauma history if present
Educate about FND not all in head
FNDHope and FND Action resources
Disability support without shame
Informational only. Consult professionals for individualised support.

🏫 School & Education Support

Flexible attendance and a phased return plan during flares
Physical accessibility — wheelchair access, adapted toilets, rest space
Seizure management plan for functional seizures — different to epilepsy protocol
Fatigue management — rest breaks, reduced timetable during difficult periods
Cognitive load reduction — written information, no time pressure
Medical care plan coordinated with treating team
Understanding that symptoms fluctuate — a good day at school does not mean the person has recovered
Peer awareness if the young person agrees — reduces isolation and misunderstanding
EHCP where FND significantly affects attendance, access, and participation
Regular communication between school, family, and treating team

⚠️ Safety & Red Flags

Functional seizures with injury risk — falling, hitting head
Complete loss of mobility requiring full care
Severe dysphagia — swallowing difficulties carry aspiration risk
Mental health crisis alongside FND — very common, needs active support
Diagnostic delay or dismissal meaning the person has been without appropriate support for years
Iatrogenic harm — unhelpful or harmful advice from medical professionals making symptoms worse
Significant deterioration in a previously stable pattern
Isolation and complete withdrawal from all activities
Self-harm or suicidal ideation
Any situation where FND symptoms are still being attributed to fabrication, attention-seeking, or mental illness alone

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