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Cerebral Palsy information card
⚡ Neurological

Cerebral Palsy

A lifelong condition affecting movement and coordination caused by damage to the developing brain. Affects everyone differently.

🧸 Early Years 🏫 School Age 🧑 Teens & Adults ♾️ Lifelong

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📖 Overview

Cerebral palsy (CP) is the most common physical disability in childhood. It is caused by damage to or differences in the developing brain, usually before, during, or shortly after birth. The brain damage is non-progressive — it does not get worse over time — but the effects on the body change as the person grows.

CP affects movement, muscle tone, and coordination. Every person with CP is different — the type, distribution, and severity of motor involvement varies enormously, as do intelligence, communication, and associated conditions.

TYPES OF CEREBRAL PALSY

Spastic Cerebral Palsy
The most common type, affecting approximately 80% of people with CP. Spasticity means increased muscle tone — the muscles are stiff or tight, making movement difficult and sometimes painful. Spastic CP is further described by which parts of the body are affected:
Spastic hemiplegia — one side of the body affected (arm and leg on the same side). Often the arm is more affected than the leg. Many people with hemiplegia walk independently but may have significant hand function difficulties.
Spastic diplegia — both legs primarily affected, with the arms less involved or unaffected. Common in premature babies. Many people with diplegia walk, sometimes with aids.
Spastic quadriplegia — all four limbs affected, usually severely. Often the most complex form, frequently involving speech, swallowing, and cognitive difficulties as well as motor.

Dyskinetic Cerebral Palsy
Dyskinetic CP involves involuntary, uncontrolled movements — writhing (athetosis), twisting (dystonia), or abrupt jerking (chorea). The muscle tone fluctuates, changing from floppy to stiff. Speech and facial movements are often significantly affected. Intelligence is frequently unaffected despite the severity of motor involvement — dyskinetic CP is one of the conditions where the greatest discrepancy between apparent and actual cognitive ability occurs.

Ataxic Cerebral Palsy
Ataxic CP affects balance and coordination. Movements are shaky and unsteady — the person has difficulty with tasks requiring precision, balance, and coordination. Walking may be broad-based and unsteady. The least common type of CP.

Mixed Cerebral Palsy
Many people have features of more than one type — most commonly spasticity with dystonia. Mixed CP is common in more severely affected individuals.

GROSS MOTOR FUNCTION CLASSIFICATION SYSTEM (GMFCS)
The GMFCS classifies CP from Level I (walks without limitations) to Level V (transported in a manual wheelchair, very limited self-mobility). This classification gives a better picture of functional ability than type alone.

ASSOCIATED CONDITIONS
CP is a motor condition but is frequently accompanied by: epilepsy (in around 30-40%), intellectual disability (in around 30-40%), speech and communication difficulties, vision impairment, hearing impairment, pain (particularly in adulthood), eating and swallowing difficulties (dysphagia), bladder and bowel difficulties, and mental health difficulties.

Pain in cerebral palsy is significantly underrecognised and undertreated. Musculoskeletal pain increases with age as the effects of abnormal muscle tone on joints and the skeleton accumulate. Adults with CP reporting pain are often dismissed or undertreated.

PROGRESSIVE DETERIORATION IN ADULTHOOD
While the brain injury itself is non-progressive, many people with CP experience deterioration of function in adulthood. This is caused by the cumulative effects of spasticity on joints (contractures, scoliosis, hip dislocation), the energy cost of mobility catching up, and pain increasing. Transition from paediatric to adult services — where CP expertise is much less common — is a high-risk period.

COMMUNICATION IN CEREBRAL PALSY
Speech is affected in many people with CP — either by the motor involvement of the muscles used for speech, or by associated communication difficulties. Unclear speech does not reflect intelligence. AAC is used by many people with CP and should be resourced and supported throughout life.

Eye gaze technology has transformed communication access for people with CP who cannot use their hands. Eye gaze can be extremely precise and enable full communication, academic participation, and independence for people with severe motor impairment.

🔍 Key Characteristics

Movement coordination difficulties
Muscle tone differences tight loose fluctuating
May affect walking hand use speech
Involuntary movements or tremors
Associated conditions epilepsy learning disabilities
Fatigue from extra movement effort
Speech may be affected dysarthria
Intelligence often unaffected wrongly assumed

🌅 What Day to Day Life Can Look Like

Physical tasks take more time and energy — dressing, eating, moving between places
Fatigue is significant — movement requires more effort than for non-disabled peers
Pain is common, particularly in joints and muscles, and often increases with age
Communication may be affected — speech may be unclear, AAC may be used
Getting around — stairs, uneven surfaces, distance — requires planning and often assistance
Spasms, involuntary movements, or muscle tightness may worsen with fatigue, temperature, or illness
Epilepsy and other associated conditions need ongoing management
Equipment — wheelchair, orthotic splints, communication aids — is part of daily life
Healthcare appointments are frequent — physio, OT, orthopaedics, neurology
People underestimate cognitive ability based on physical presentation — this is isolating and frustrating

What People Often Get Wrong

CP does not mean intellectual disability — many people with significant physical CP have full cognitive ability
Unclear speech does not mean the person has nothing to say or cannot understand
CP is not caused by the parents doing anything wrong
The brain damage does not get worse — but secondary conditions like pain and fatigue do develop
Wheelchair use is not giving up — it enables participation and conserves energy
People with CP can lead full, independent, or semi-independent lives with appropriate support
CP looks very different from person to person — no two people with CP are the same
Chronic pain in CP is real and serious but frequently dismissed by medical professionals
Fatigue in CP is neurological and genuine — it is not laziness
People with CP have the same right to relationships, employment, and self-determination as anyone else

What Helps

Physiotherapy occupational therapy
Mobility aids wheelchairs walkers
Communication aids AAC eye-gaze
Accessible environments adjustments
Pain management when needed
Fatigue awareness rest breaks
Do not assume cognitive ability from physical
Presume competence always
Speech therapy for communication
Adaptive equipment for independence
Informational only. Consult professionals for individualised support.

🏫 School & Education Support

Physical accessibility — ramps, lifts, adapted toilet, appropriate seating and desk height
AAC device training for staff and integration into the school day if used
Extra time in all written tasks — fine motor difficulties affect writing speed
Adapted PE with meaningful participation at the right level
Physiotherapy programme integrated into the school day where needed
Healthcare care plan for any medical needs — epilepsy, medication, tube feeding
Fatigue management — rest breaks, reduced physical demands at key times
Personal care support provided with dignity and privacy
Transition planning to post-16 well in advance
Assumptions about cognitive ability based on physical presentation must be actively challenged by staff

⚠️ Safety & Red Flags

Pain that is not being adequately assessed or managed — very common and very serious
Swallowing difficulties — aspiration pneumonia risk if not managed
Seizure activity changing or worsening
Equipment failure or needs not met — wheelchair breakdown, AAC device not working
Safeguarding concerns — people with CP are at higher risk of abuse, particularly if communication is limited
Scoliosis developing or worsening
Transition to adult services breaking down — a high-risk period
Increasing isolation as physical barriers to participation grow
Mental health difficulties developing alongside physical condition
Any placement that does not have the physical accessibility and trained support the person needs

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